Help!

'In the dark' ... 'Out of the loop' ...

Something I hear every now and then from a parent who feels a general sense of unawareness when it comes to what is 'out there' and available to his/her child. I hear it most often with those new to the area or to those who have a child who is young and/or newly diagnosed.

I want to point out, mainly, that there are opportunities for your child. Yes, it does seem, at times, that it's left to chance of bumping into someone who has been there, done that. I was just discussing this again the other day with a group of parents, therapists, and interventionists. We were discussing a plan to put together some sort of joint blog/discussion board (loaded with lots of pertinent information and tips from various parents and professionals).

Until then, today I want to simply say, "yes, there are opportunities for your child". There are answers for your questions, and there are even answers for questions you don't know you have ... yet.

I think a good initial plan of action for anyone with a child who has special needs is this:

1) Contact your local disabilities board (state and/or county), and get a service coordinator assigned to your child. A service coordinator will be able to provide some good information applicable to resources, therapies, funding, and so on.
2) Parent Advocacy Groups are wonderful. They are the ones who have been where you are, and have jumped through hoops as you are trying to now. They may be able to save you some trouble. Find these by searching the web or simply asking around (other parents of children with special needs).
3) Research! The Internet is a good source, but as always, check the source. Be sure he/she/it is reputable.

4) Speak to your child's pediatrician, doctors, therapists about possible resources.

This is a good BASE from which to start.

Jessica